Clostridium Difficile Support Group Database

 

 

IMPORTANT DISCLAIMER AND WARNING - READ THIS PRIOR TO READING THE DATABASE:  The database information was submitted by sufferers of clostridium difficile colitis/antibiotic associated diarrhea-colitis.  By reading the database you agree and understand the following information:  The information was not submitted by doctors and is for informational purposes only.  None of the information in the database has been proven accurate and absolutely may not be taken or assumed as medical advice.  Do not self-diagnose. Do not try self treatment.  Clostridium difficile is a dangerous affliction if not treated exclusively by a physician who is specifically trained in its treatment.  It is recommended that you see a doctor for any sort of treatment for any and all illnesses.  The administrator of this web site assumes no responsibility or liability.  You are voluntarily using this web site at your own risk.  No part of the database may be reproduced or copied without prior permission from the administrator at cdiff@cdiffsupport.com

THE C. DIFF. DATABASE

 

REF # RACE GENDER AGE LOCATION LENGTH OF INFECTION RECURRENCES PRESCRIBED MEDICATIONS SUPPLEMENTS SUSPECTED CAUSE RELATED ILLNESS HOSPITALIZED WHEN INFECTED? SYMPTOM FREE? TYPES OF DOCTORS VISITED HELPED CONDITION WORSENED CONDITION
1 wht female 24 Buffalo,MN 6 mo. 7 Flagyl, Vancomycin culturelle suprax antibiotic ear infection no no family doctor nothing lack of knowledge about c.diff
2 wht female 51 Richboro,PA 8 yrs 15-20  Vancocyn, Bentyl, Buspar   dirty diapers in a daycare irritable bowel syndrome (IBS) no on and off  family doctor,
gastroenterologist,
infectious disease specialist
 taking Vancocyn on a schedule of days on and days off
 my last attack followed taking Zythromax for an infection
3 wht female 44 Mankato,MN 3 mo (4/27/200) 1 Prednisone (for UC?),
Flagyl,
Asacol (for UC), Rowasa enemas (for UC),
Vancomycin
Prescription for Cipro for
nonexistent urinary tract infection.  Took 7 of the
10 pills prescribed		 none no no Family practitioner,  going to GI for colonscopy
 Not being prescribed Cipro when
I never needed it in the first place!  ("Yes, I'm
angry!")
 Delaying seeking treatment as
I assumed this was a UC-like attack I'd experienced
before, but instead of going away, it just got worse
and worse.
4 wht female 13mo. Frederick, MD 9 mo. 6 Flagyl, Vancomycin,
Questran
 Culturelle cepholosporins Sepsis yes no pediatrician,gastroenterologist no food allergies- milk,soy,egg
5 wht female 41 Pound Ridge, NY 21 mo. 20-30 metronidazole, vancocin s. boulaardi, lactobacillus clindamycin & ampicillin none yes - baby born no OB/GYN, Gastroenterologist Vancomycin pulse dosing  
6 wht female 18 Duluth, MN 2 mo. 1 Flagyl,Vancomycin, Lactobacillus   Frequent antibiotic use, needed for bladder infections.
 Kidney stones, UTI's
 yes no Family Practice Physician(6 of them), 2 Gastroenterologists, Urologist nothing The antibiotics they have been prescribing to treat the c-diff seem to only be making my symptoms a lot worse.
7 wht female 44 Indiana 7 mo. none flagyl,5wk tapered dose Lactobacillus GG, (Culturelle) Cipro Traveller's Diarrhea no yes family MD, 2 G.I.'s, (2nd GI helped) Tapered Flagyl, Lactobacillus, Gatorade for fatigue (likely replaced electrolytes). misdiagnosed with IBS for 7 months prior to treatment
8 wht female 29 Seattle, WA 1 yr & 1 mo 3 flagyl, vancomycin lactobacillus, sacro-B, others none apparent (no antibiotics or hospital stay) none no no gastroenterologist, general practitioner, naturopath nothing nothing
9 wht female 65 San Jose, CA 1 mo 1 flagyl, vancomycin Jarro-dophilus antibiotics - cleocin (Clindomycin)   yes no gastroenterologist nothing allergic reactions to flagyl & vanco
10 wht male newborn Philadelphia, PA 5 mo 3 vancomycin Primadophilus, Culturelle (acidophilus) From hospital at birth or from mother (vaginally) at birth abruptly stopping breastfeeding at 3 weeks of age none yes, for birth yes pediatrician, pediatric GI pulse dosing vancomycin & primadophilus  
11 wht female 24 Manitowoc, WI 3 days 2 Flagyl acidophilus,pepto bismol amoxicillin,ciprofloxacin for ear infections ear infections yes no internal MD acidophilus possible misdiagnosis; doc's thought cramping was reproductive system problem
12 blk female 26 Bahamas 2 mo. 3 Flagyl, Vancomycin acidophilus, "Cand-X" Clindamycin bacterial infection yes no family/general MD nothing not known
13 wht male 44 NSW Australia 20 yrs ? continuous Vancomycin,Flagyl, Probiotic infusion healthy donor stool administered by enema antibiotics none no no Gen.Physician,Gastroenterologists(3) healthy stool enema antibiotics
14 wht female 44 Pennsylvania 3 wks 1 Flagyl none post surgery antibiotics hysterectomy yes no Gyn, infectious disease MD bland diet  
15 wht female 29 Canada 6 mo 5 Vancomycin, Flagyl acidophilus yogurt, pills & powder. Questrin powder antibiotics in hospital mastitis, breast infection yes no Family MD, Naturopath, GI bland diet, avoid yeast/sugar.  ate fruits and vegetables cooked. stress, sugar, yeast, antibiotics
16 wht female 54 Gainesville, FL 2 yrs 8 Flagyl, Vancomycin, Colestrin, brewers yeast brewers yeast, acidophilus-bifidus widespread antibiotics in Intensive Care IBS yes no gastroenterologist (GI) acidophilus, diet & Vanco eating sugars
17 wht female 38 Marietta, GA 1 mo continuous Vancomycin acidophilus post surgery antibiotics IBS (Irritable Bowel Syndrome) yes no Gynecologist (performed hysterectomy prior to c-diff episode)    
18 wht female 27 Wheaton, IL 1 mo. continuous Ciproflaxin, Flagyl, Vancomycin, Dicyclomine Probiotics Cefton (antibiotic) sinus infection no no ER, General practicioner, Gastroenterologist nothing yet Cipro (aggravated my condition)
19 wht male 73 Raleigh, NC 18 mo. continuous Metronidazole none 18 days of antibiotics dental surgery, prostrate biopsy, BPH no no General practicioner, Gastroenterologist Metronidazole Digital rectal exam?  Immodium seemed to make worse
20 wht female 54 Ft. Collins, CO 8 mo (4/2000) continuous Flagyl, Questran, Asacol Acidophilus antibiotics GERD / vag. hysterectomy yes no Gastroenterologist nothing nothing
21 egypt female 28 Montreal, Canada 1 mo. continuous Cipro, Flagyl, Vancomycin   Cipro not specified yes no Gastroenterologist    
22 wht female 1 yr. North Carolina 6 mo. 1 Flagyl, Vancomycin yogurt Amoxil/Ceftin ear infection, Nystatin fungal cream no no Pediatric Gastroenterologist    
23 wht male 3 yrs. North Carolina 3 mo. 1 Flagyl, Vancomycin yogurt No apparent cause none no yes Pediatric Gastroenterologist    
24 wht female 54 Calgary, Alberta, Canada 7 wks 2 Flagyl none antibiotics none yes no approx 20 various docs/specialists Flagyl MD's unaware of this disease
25 wht female 66 Barrow, Cumbria England 4 days (deceased) - Vancomycin none antibiotics cephlosporin none yes (deceased) General Practitioner (GP), Consultant Surgeon   Lomotil subject died of toxic mega colon four days after contracting c. diff in hospital
26 wht female 41 Santa Rosa, CA +/- 7 years ? Vancomycin, Flagyl yogurt enemas Augmentin (antibiotic) none yes no G.I. Infectious disease doctor Rifaximin (Rifampin derivitive, not FDA approved yet) MD's unfamiliar with condition
27 wht female 37 Mill Valley, CA 2 mo 2 Vancocin (Vancomycin) acidophilus, bifidus, sachramyces boulardii, peppermint tea unknown proctitis no no Gastointerologist (GI), acupuncturist, chinese herbologist. nothing yet Not knowing how to get better
28 wht female 41 Milford, MA 1 year - Flagyl - Long term, low dose antibiotic therapy for recurring u.t.i.'s repeated uti's yes no Gastrointerologist (GI)   2 yrs. after infection & 2 colonoscopies & a gastroscopy - was diagnosed with IBS
29 wht male 63 Quitman, GA appx 4 years appx 6 - 7 times Flagyl none Possibly while on trip to Syktyvkar, Russia.  Got diarrhea/cramps.  Were warned about water/dairy products - but ingested some of each - boiled the water. none no no GI nothing nothing (working on possible antecedent conditions that trigger symptoms of c.diff)
30 wht female 51 West Lafayette, IN 2 mo 1 Flagyl - Z-Pac twice in 6 weeks   yes no GP - -
31 wht female 43 Vancouver, BC, Canada 2 wks - Flagyl Vitamin E & B Complex Novo-Clindamycin dental root canal abcess no no, improving GP Vitamin E & B helped nerves and pain.  Bananas for food (easy to digest and pass) Any type of over the counter medicine made worse
32 wht male 10 Chanhassen, MN 5 mo 3 Metronidazole Culturelle Augmentin Ear infection/salmonella no no Pediatrician, Pediatric GI Metronidazole Salmonella
33 wht male 33 Spokane, WA 1 wk - Flagyl, Vancomycin - 1 wk. of IV antibiotics surgery yes no Being treated by patient's Nephrologist (Kidney Doctor) nothing -
34 wht female 57 Toronto, Canada 3 mo 4 Flagyl, Vancomycin Acidophilus Moxiflacin sinus infection no no Gastroenterologist    
35 wht female 47 Frankfort, Ill. 2 wks continuous Flagyl   recent hospital stay-others on same floor diagnosed similarly none yes no orthopaedic surgeon, internist, e.r. doc's. nothing  
36 wht female 69 Gaithersburg, MD 10 mo 9 Flagyl, Vancomycin, Questran Sacchramyces boulardi, Culturelle, yogurt, pepto bismol Antibiotics; Cipro and Ceftin UTI's yes no Family doctor, G.I. no false negative stool results
37 wht female 40 Vancouver, WA 3 mo 4 Metronidazole, rifampin Lactobacillus, Cholestyramine, Synsorb Study Participant. Augmentin/Amoxicillin viral infection no no Urgent care MD, Family MD, Infectious Disease Specialist Synsorb study urgent care physician didn't do throat culture to verify bacteria or virus prior to prescribing augmentin.  Turned out to be virus.

 
38 wht female 39 Elburn, IL 9 mo 2 Flagyl Vitamin E, acidophilus Not sure.  Just got flu symptoms that never went away. none no no General Physician, Gastroenterologist nothing waiting to get help
39 wht female 49 Stony Point, NY 6 mo 5 Flagyl, Vancocin saccharomyces boulardi, Culturelle lactobacillus, Primadophilus reuteri antibiotics surgery(appendix, ovarian cyst)/infection yes no CDC Doctor, GI, MD. Vancocin First Doctor discounted possibility of c.diff
40 wht male 32 Providence, RI 6-9 months 3 Flagyl, Vanco Culturelle, Acidophilus Cipro and/or Levaquin Epidydimitis no no Family doctor Organic yogurt, Flagyl while on it. Catching cold/flus
41 wht female 71 Wellsburg, WV 5 mo. continuous Flagyl Culturelle Zithromax, Levaquin emphazyma yes no GP, Gastro, Colon Rectal spec. nothing "ignorance"
42 wht female 43 Parish, NY 1.5 mo. 1 Metronizole acidophilus Augmention Sinus infection no no General Practitioner nothing Dairy products, hard to digest foods
43 wht male 40 Norway 3 wks   Flagyl Yogurt Clindamycin Wound infection (erysipelas) no no MD Early start with Flagyl Reactive arthritis to knee joint caused by c. diff infection
44 wht female 29 Vermilion, OH 2 mo. 2 Vancocin Lacinex Cleocin none no no MD, GI nothing nothing
45 wht female 36 Gulf Breeze, FL 5 mo. not sure Flagyl, Solumedrol, Rimeron(?) acidophilus none Recurring UTI's? no no GI nothing  
46 wht female 78 Ontario, Canada 6 mo. continuous Flagyl, Vancomycin lactobaccilus acidophilus antibiotics UTI after stroke yes no GP vancomycin doctor unfamiliarity with proper treatments
47 wht female 32 Virginia, US 20 mo. 8 Flagyl, Vancomycin, Cholestyramine saccharomyces boulardii, lactobacillus acidophilus antibiotics, albenza (parasitic infection) chronic intestinal issues no no GI (numerous), Infectious Disease Specialist Vanco (8wks tapered) with S. Boulardii & Cholestyramine Albenza, Flagyl made a lot worse.
48 wht female 47 Oreland, PA 2.5 yrs. 6 Flagyl, Vancomycin, Cholestyramine s. boulardii Ceftin IBS no no Family MD, GI restrictive diet stress, spicy foods & unknown underlying medical problem
49 Filipino female 38 Foster City, CA 3 wks. none Flagyl "Reliv" Clindamycin root canal no yes Primary Care MD being assertive with doctor immodium, not going to doctor soon enough
50 bi-racial male 12 mo. Goshen, IN unsure continuous Flagyl none Zithromax intestinal bacteria, campolobacter yes no GI Surgeon & pediatrician nothing intestinal surgery, malrotation of intestine & fundoplocation to prevent reflux
51 wht female 66 Vancouver, WA, USA 5 mo. 1 Metronidazole probiotics Cephalexin not listed no yes MD avoiding dairy products, taking probiotics 2 weeks of Immodium AD
52 wht male 6 Sewel, NJ 9 mo. 2 Flagyl, Vancomycin none antibiotics ear & sinus infections yes no GI, Family MD Vancomycin, Metamucil, Lactobacillus GG Flagyl
53 wht female 53 McAllen, TX 1 wk none Vancomycin Gatorade (for electrolyte imbalance), yogurt, lots of water. antibiotics (Levofloxin, Flagyl, Vermox diarrhea no no Family MD nothing not sure
54 wht female 35 Minnesota 4 mo 4 Flagyl, Vanco L. Acidophilus (Culturelle) Long term antibiotics (augmentin) sinus infection no yes Family MD Culturelle (L. Acidophilus) Waiting to replenish good bacteria
55 wht female 24 Fort Collins, CO 1 yr. continuous Flagyl, Vancomycin, Rifampin Bacid caplets Cipro/Ciproflaxin none yes no MD, Infectious Disease, GI live-culture yogurt, Bacid caplets Mis-diagnosed & given Cipro
56 wht male 41 Bremerton, WA 1 mo. none Flagyl, Vancomycin S. Boulardii, Acidophilus (Culturelle), L-glutamine, Buturic acid Ampicillin (antibiotic) knee surgery no yes MD, Physicians Assist., Naturopaths (2)

 

 Flagyl, Culturelle wheat
57 wht female 37 Vancouver, BC, Canada 3 mo. 3 Metronidazole, Vancomycin Yogurt, S. Boulardii, Acidophilus, (Culturelle), Vit.B complex, other probiotics... Clindamycin Took antibiotics during a normal birthing process yes, while giving birth no ER Doctor, Family MD, GI Vancomycin Mis-diagnosis by ER doc., Metronidazole (due to mis-diagnosis)
58 wht female 56 Miami, FL 4 wk. continuous Flagyl, Vancomycin, Immodium, Kaopectate Organic yogurt Clindamycin tooth infection yes no Primary Care, ER Immodium, then Kaopectate, hot water bottle being physically active, senstive while eating
59 wht female 61 Levelland, TX 4 to 5 yrs. multiple Metronidazole, Flagyl, Vanco probiotics Erethromycin root canal no no MD, GI Vancomycin helps Cipro & Flagyl at the same time, erroneous negative stool samples
60 wht female 50 Saugus, MA 4 wks 2 Flagyl, Vanco   Antibiotics diviticulitis yes yes Colon/Rectal Surgeon yogurt, avoid meat, sanitized thoroughly high fat foods, high fiber foods
61 wht female 49 Washington 1 yr.   Flagyl, Vanco S. Boulardii, Multi-vitamins, diet, yogurt Antibiotics sinus infections no yes Internist, GI, Infection Spec., Ear, Nose, Throat Docs.(2) Support Improper treatment
62 wht/dutch female 28 St. Catharines, ON, Canada 1 mo. 1 Flagyl Iron, Vit. B, Acidophilus, pancreatic enzymes not sure - had flu & went to hospital colitis   no Family, GI, N.D. diet bad food, medications
63 wht male 32 Saratoga Springs, NY 6 mo. none Flagyl Yogurt, Acidophilus Cipro & Keflex mis-diagnosed, non-existent urinary infection no no Family MD, GI Flagyl, acidophilus, yogurt misdiagnosis & aqcuired IBS from having c. diff
64 wht female 57 Rockwood, MI 2 mo. continuous Flagyl, Pepto Bismol multi-vitamin, hi-po. B complex, 500mg Vit. C. Antibiotics 3 urinary infections in a row. no no Family MD, Internist adding electrolytes/Gatorade eating meat, spicy foods, buttermilk
65 wht female 60 Lenexa, KS 4 yrs. multiple Flagyl, Vancocin, Questran S. Boulardii, Lactinex, Lactobacillus GG Vantin, Cipro, Ampicillin, Augmentin, Pen VK, Levaquin Sinusitis, Bronchitis yes no - have IBS Gastroenterologists, Infectious Disease Doctors endoscopic infusion of good bacteria antibiotics
66 wht male 33 NSW, Australia 2 yrs. 4 mo. 5 Vancocin Vit. B, buffered Vit. C, probiotics unknown Hashimoto's Thyroiditis no no Gen. Practitioner, GI, Microbiologist nothing stress, dairy products, cold weather
67 wht female 44 Milford, MA 5 mo. 5 Flagyl, Vancomycin, Cholestine Acidophilus, Saccharomyces Boulardii, Yogurt w/ active cultures Amoxicillin Dental surgery no no Family Physician, GI, Vancomycin misdiagnosis, greasy food, dairy
68 wht/Italian female 63 Salinas, CA 5 wks. continuous na na na na na na na na na
69 wht female 51 Montepelier, VT 5 wks continuous Metronidazole, Vancomycin Acidophilus, biotin, garlic, pau d'arco, herbs, grapefruit seed, All One Vitamin Drink Cipro Bladder infection / UTI's no no Primary Care Doc, GI, Acupunturist/DO C. Diff Support Group!  changed diet, acidophilus poor diet, late referral to GI doc, original doctor's lack of knowlege, using Cipro as a "preventative".
70 wht female 51 N. Augusta, SC 4 mo. 4 Vancomycin, Bacitracin Multi-vitamin, Lactobacillus Levaquin, Cipro, Flagyl Abdominal abscess yes no Surgeon, GI, Infectious Disease Vancomycin Flagyl, spicy/greasy foods
71 wht male 14 Derwood, MD 1 wk unknown Flagyl Vitron C, multivitamin Hospitalization Crohn's yes no GI Steroid immunosuppression Crohn's disrupting flora, Unicil in hospital
72 wht female 36 Wash.DC, USA 7 mo.   Flagyl, Vanco, Questran Lactobacillus, S. boulardii Tequin   no no Internist, Infectious Disease MD    
73 wht female 55 Woodbury, MN 3 mo. 3 Metronidazole, Vancomycin S. boulardii, Acidophilus Clindamycin Root canal infection no no MD, GI Vancomycin while on it. I should have sought treatment at the first sign of diarrhea.
74 wht female 11 mo. Germany 2 mo.   Metro, Vanco   cephalosporins   yes no Pediatrician    
75 wht female 40 Tempe, AZ 4 mo.   Flagyl, Vanco, Prevacid primal garden, vitamins,glutamine,sacro-b, twelve salts,rf plus,rhizinate Cipro & keflex   yes no GI, MD, ND IVs in hospital, probiotics  
76 wht female 8 Kalispell, MT 6 mo.   Flagyl   unknown (no antibiotic usage)   no no Pediatrician    
77 wht female 33 Ontario, Canada 7 mo.   Vancomycin L. Acidophilus, bacid antibiotics hospital stay after childbirth yes yes MD, GI eliminating dairy  (temporarily - 1 yr), increasing the fiber dairy

 
78 wht female 42 Sarver, PA 1 yr.   Flagyl, Vanco   antibiotics   no no MD, Infectious Spec.   most foods
79 wht female 57 Hillsboro, OR 2 1/2 mo.   Flagyl Acidophilus clindamycin cyst removal no no MD, GI b.r.a.t. diet dairy, fiberous veggies
80 wht female 78 Redding, CA 3x/5 yrs   Vanco, Flagyl probiotics,aloe vera, papaya, antibiotics bladder infections yes no GI bland diet, no sugars/high fats sugars/fatty foods/antibiotics/hospitalization
81 wht male 42 W.Hollywood,CA 6 mo.   Flagyl, Vanco Metamucil,Trader Joes Psyllium,Iron,Jarrow-Zymes Plus, Oregano Oil, Primal Defense HSO Probiotic antibiotic   no no Internist & GI low carb/high protein diet dairy
                               
                               

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